Today I received an invitation in my email to attend this local event:
" ... a multi-disciplinary artist with Tourette's Syndrome residing in the Philadelphia area, will be collaborating with a local dance theater, transforming vocal and motor tics into exuberant and avant garde choreographic and theatrical sketches. Combining the compelling language and movement of Tourette's Syndrome with the intensity of dance will give viewers an eye-opening perspective on this disorder."
The performance is to be followed by a local neurologist giving a scientific presentation about Tourette's and other movement movement disorders.
As someone with Tourette's, and with all due respect to the artist, I don't think this is "avant garde", this is fucking ridiculous. Why do people think that folks with unusual disorders need to be "interpreted"? I mean, why not have an event with interpretive dance about hemorrhoids followed by a presentation by a proctologist? These kinds of things only serve to make us seem more like an "other", like outsiders, instead of just regular people leading regular lives. If the goal of this event is to raise awareness, it fails miserably. Rather it makes us look like fucking freaks.